Information For Researchers

As we are currently in the early stages of collecting data, it is not yet possible to request data from the registry.

In principle, though, the A-T registry will make data available to researchers, institutions and companies with research projects which seek to understand the natural history of A-T and/ or the related conditions or to develop new or improved treatments for them.

All requests for data will be considered by the Registry’s Scientific Board, which will make the decision to provide the data or not and agree any conditions to its use.

For more information on this, please contact